when trials heavy and sudden, fall upon us;
when adversity takes the place of prosperity;
when friends who rejoice with us in our sunshine desert us;
when trouble thickens around us, still will she cling to us,
and endeavor by her kind precepts and counsels
to dissipate the clouds of darkness,
and cause peace to return to our hearts".
~Washington Irving
I’ve been thinking about this quote a lot lately, as I have been trying to focus on Jade's strengths so we can help him have the BEST life he can and use his strengths to give him some kind of a career once he moves on from High School.
I am realizing that life hasn’t turned out the way I thought it would, but it’s been a wonderful life indeed!
where we hear the words come out of our mouths that have every range of emotion from excitement, fear, stress, nervousness thrilled beyond measure and anything and everything else in between…those words:
“I’m pregnant”!
I watched everything that I put in my mouth, trying to avoid anything with preservatives, wanted to make sure I ate a balanced diet and took in plenty of B-Vitamins and Folic Acid and doing everything I could to make sure I delivered a healthy baby.
I treasured each and every moment of pregnancy
and I loved more than anything feeling the baby move all of the time and knowing I had a sweet little human growing inside that I would soon be a mom to.
I was SO excited for the experience to be a mom!
When I went to my last doctor’s appointment and he checked me and I was dilated to a 3, he told us to meet him at the hospital and that we were going to have a baby before the night ended. Tracy and I took our time (almost 3 hours later) getting to the hospital, because we knew, it was our last moment that we would ever be just the 2 of us, until our kids were raised and out of the house.
Those precious moments together with just Tracy
and I are cherished memories that I will never forget!
(only had ½ dose of Nubain and nothing else for pain) (which I even commented after Jade was born to the doctor: “that wasn’t bad at all”!)
To that first moment when you lay eyes on your little bundle of joy, you want to look them over and make sure they are perfect and have all 10 fingers and toes and check out their features and see who they look like and how much hair they have and you think of the dreams you have for that precious child that you will love and be a parent to.
from cuddling and reading,
to swinging and experiencing nature with them
to dressing them up in cute clothes and styling their hair.
And before you can blink your eyes,
they are starting school and you can’t believe how grown up they are.
and then just when you think things are going great, you get a call from the school of their concern for your child and how behind the other kids he is and how he doesn’t seem to be grasping learning.
So, you decide that maybe he is a little immature for his age and so you hold him back a year, but realize that is not helping matters at all either.
For some reason he is challenged greatly with learning
and probably will be for the rest of his life.
It totally broke my heart that I had to take a photo of it. He had fallen asleep by the puzzle and was frustrated that he couldn't figure out how to get the pieces back in the right places even though we had helped him over and over successfully put them in the right spot!)
I felt helpless and wanted SO badly to help him and see him succeed.
For the next few years I bought every child’s book I could get my hands on and filled an entire book shelf.
I read constantly to him,
bought flash cards, puzzles and many other learning tools hoping that the more we worked on things, somehow it would “click” and he would be able to learn and be where the other kids his age were in class. Try as I might, nothing I did, seemed to make much of a difference for him academically.
It was the hardest thing ever to come to terms as a parent to realize that I had a child with a serious learning disability, who was tested and had a low IQ as well and an even harder thing, was telling people that you have a challenged child who is in the “Resource room”
(which used to be labeled “special education” when I was growing up).
(Ethan is sure enjoying all of those books I purchased for Jade…
he thinks we have a library!)
The hardest thing about this is,
for the most-part, Jade looks normal and can communicate quite well…
although he doesn’t always use the big words he likes, in the correct context and often gets stories twisted and details get misconstrued.
Even so, his social skills are remarkable!
He loves fashion and notices every single detail of what people are wearing, what they look like etc…
He is actually amazing in this area!
Jade has more friends than anyone that I have met.
We drop him off for school and there are SO many kids (including lots of cute girls) that are always coming up to him and saying “HI” and going out of their way to be nice to him.
He is a very well liked boy and is SUCH a social bug!
He absolutely LOVES people!!
The saddest thing of all, is that he is so behind others, he doesn’t really have a “best friend”. He has plenty of people that are nice to him, but no one person he can go and “hang out” with. Thank goodness he has us for his best friends (his only true friends), but there is nothing better for kids then to have ONE person their age that they can relate to and share life experiences with.
It makes my heart ache that he wants SO badly to have close friends, but everyone has their own groups of friends and they never seem to include Jade.
The saying is true…
when the school doors have closed and the sun has set,
everyone has forgotten about Jade and
they are all into their own groups of friends and activities.
the Cross Country team and Track team,
where Jade can participate and feel like he's a part of a team.
He loves running and it doesn’t seem to bother him that he comes in last. He always says after each race: “I sure did a good job today”! He has had SO much encouragement from all of his team mates and even though he does come in last, he has the biggest cheering section of people that care about him!
I’m greatly saddened thinking of him wanting to be independent, but not being able to read and write well enough to ever be able to take and pass a drivers license test.
(someday, we hope that can happen…I’m crossing my fingers).
We have sad moments, thinking of what kind of job Jade will be able to get that he could provide for himself someday.
He loves art and loves to work with his hands and gives the world’s BEST massages.
Someday, he would love to be a Massage Therapist,
or help elderly people in providing relief through massage.
I hope that someday he can really make that dream become a reality.
because he can’t drive and if a girl did ask him, it would probably be a “charity date”…
that was until we met Karissa, a sweet girl with similar challenges and she and Jade have a lot of fun together and have gone to 3 dances this past year and had LOTS of fun.
Each time I go to see Jade at school and go and see the kids that he is around all day that have severe challenges, I leave the school crying as I drive home, thinking that my son just wants to be normal.
He deals with A LOT each day, even more than I can ever comprehend.
He is truly a blessing in my life!
We have even been told that he has characteristics similar to a condition called “Williams Syndrome” and we are looking into getting him genetically tested to see if this is what he has.
Whatever he has, it’s not curable.
I have finally had to deal with my
most challenging moment ever as a mom,
when my nine-year old son writes, reads and does math and everything better in school than my 17 year old. It is so hard to praise Ethan and not have Jade feeling bad.
Life is definitely hard some days
to love and accept both of my kids for their strengths,
without making one of them feel badly.
and it is these challenges that have made me
the person I am today!
So grateful to be blessed with an amazing son
that truly teaches me what life is all about!
